I HAVE BEATEN IIH!!!!!!!!

Hello my lovelies!

 

Thank you for returning to my blog, or if you are new HEY!

 

I have some brilliant news! Possibly the BEST news I have ever received in my life time!!

 

I AM IN REMISSION!!!!!

 

I HAVE BEATEN IIH!!!

 

 

This is the most amazing thing I have ever done in life. EVER!!

 

As you can tell I am completely overwhelmed and excited.

 

Why?

This means that I can now do ANYTHING I want without having to get permission.

I can get on a plane and fly anywhere, I can climb Mount Everest if I so wish (lol), I can even go deep sea diving!!!

I can do it all without worrying about the pressure in my head making me go blind!!!! 

I can do it all!!!

 

The last 2 years have been absolute hell!

But I am so proud of myself for pushing on and keeping a positive outlook!

I credit that for my recovery.

 

I started my IIH journey in agony.

I was in A&E blind in my left eye, half my right vision gone, haemorrhaged behind my eyes, bleeding out my ears, nose, mouth, vomiting blood.

The pain in my head was so extreme that I would have gladly shot myself!

 

However, I have the most amazing consultant, fantastic family and friends & I got through it.

I got emergency transferred to the correct hospital.

 

I had to learn how to walk, talk and feed myself properly again.

 

I have lost some memories. I cant change that.

But I do sometimes get some back in a flash.

 

My taste and smell is a bit dodgy, but Ill take that one on the chin.

 

I have had over 28 Lumbar Punctures.

They are a killer.

At first I had so much fluid, that the LP's were performed before the anaesthetic could take properly!

I would still take that pain over that pain in my head any day! 

 

Am I angry?

No.

 

Why?

I have learnt so much about myself, my loved ones on this journey. I have learnt how strong I am. Who I really am as a person. And I kind of like me! 
If I hadn't have gone through all this, to be honest, I wouldn't have lost over 4 stone (probs 5 now!)!!

 There will still be tough times. I will still suffer with chronic headaches, but

 

 

 

LIFE IS TO LIVE, NOT TO ENDURE.

 

Kate

 

XxX

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PS THANK YOU TO EVERYONE FOR ALL YOUR SUPPORT ALONG THE WAY.
YOU REALLY WILL NEVER TRULY KNOW WHAT YOUR KIND WORDS HAVE MEANT OR DONE FOR ME.
I CANT SAY THANK YOU ENOUGH.
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