MY EXPERIENCE WITH IIH

I all of a sudden got nervous as today I wasn't just going into work. I was doing a corporate event with my work colleague, team leader and most importantly my best friend. I think to be honest that was the only reason I went in! I was absolutely fine last night, in fact rather excited; this morning however... NO! I thought I was going to cry. This no doubt was making my headache worse.
I forgot all about my worry's once I got chatting away to Tanya, mainly because she has me laughing so much it makes my head worse! :/ Once we got there though we were professional obviously. That's one thing I love about our friendship.
She had me set up the table as she knew that her version wouldn't satisfy my OCD. :) We had goodies to give away. That always brings people over. :) It was lovely chatting away to people. I was introverted at first, but as I relaxed & felt I had observed Tanya enough I started to join in conversation.


THE REASON I HAVE WRITTEN ABOUT THIS TODAY AND NOT MAKE UP IS:
 IIH doesn't just affect you in the fact you get a headache. It changes your life and the people around you's lives. It severely knocked my confidence. So today was a MASSIVE STEP!!


My first experience with IIH was as follows:
 The headache was so crippling, I wouldn't wish it on my worst enemy... EVER. It felt like I had a drill going in either side of my head, along with someone stamping on it and I really thought my eyes were going to 'POP' out with the force of a person pushing them from the inside out. All that along with the fact I had completely lost my sight in my left eye and half my right had gone, my nose was bleeding, I'd haemorrhaged behind my eyes, I couldn't even open them as any light made me feel as though they were going to disintegrate, I couldn't hear as the ringing was so loud, yet I couldn't stand to hear my Mr eat a packet of crisps it was too loud, I was vomiting up blood, I couldn't walk or talk and I was failing tests they do on stroke patients.... On top of that they were telling my Boyfriend, Mum & Dad that I may have a brain tumour. As that's what this disability does. It shows all the signs of a brain tumour. I basically have a brain tumour.... Without the tumour. That's how it got described to me & my loved ones.

A year on, I think I'm doing blooming good! I don't tend to get too negative or down, as I've been given a chance at life. Yes I may not be able to do things as full on as before. But I have a life. Why not live it as full and happy as I can? Don't get down about things you cant control in life. Just accept it and move the hell on. I found that make up, hair, glitter, beauty, walking, and changing my whole entire house around was my perfect therapy! :) In stead of putting all your FABULOUS ENERGY into negative things, put it into POSITIVE, HAPPY things! I know its easier said than done, but positive thinking has a lot to do with your recovery.

XxX